We’re highlighting five creators who are helping raise awareness for cystic fibrosis. They’re voicing the many ways people experience the disease by sharing a part of their life through written and ...

When my friend Michelle and I started a volunteer group, we looked forward to giving back to the community with our free time. What we didn’t anticipate was how deeply we’d become involved in a cause ...

For many years, cystic fibrosis took a toll on my mental health — long before I was diagnosed. But over time, I began to find meaning in small moments, slowly rebuilding after breaking down. It’s been ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

I’ve struggled with my mental health for as long as I can remember, but being diagnosed with bipolar disorder the summer after starting Trikafta made me question how the medication may have affected ...

My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.

Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...

My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.

On behalf of millions of patients and consumers we represent across the United States who face serious and chronic health conditions, our organizations urge Congress to oppose cuts that will terminate ...

Today 40 non-profit, non-partisan organizations issued a statement in advance of the House Energy and Commerce and Ways and Means Committee markups asking them to stop assaults on healthcare that will ...

Growing up, I participated in Great Strides in honor of my cousin who has CF. Today, I stride with even more purpose — now for my son, who was diagnosed with CF.