The money is invested in research, clinic certification, and lobbying, among other activities. The dispute threatens to splinter a national advocacy campaign that has bolstered awareness of ALS ...

“But he wanted ALS research, not politics, to be his legacy. Even though he had an extraordinarily challenging diagnosis, he was on the phone, raising funds. He wanted to do whatever he could to ...

He didn’t just want to stand up an entirely new ALS advocacy group, or secure more funding for ALS research, or expand access to treatments for the roughly 15,000 Americans with ALS, or provide ...

And he has used his connections to change the face of medical advocacy in this ... movement fighting for research and government funding. Its tagline is, "ALS is relentless. So are we." ...

but his legacy will live on forever with the impact he made on ALS research and advocacy.Frates and Pat Quinn, of Yonkers, New York, inspired the "Ice Bucket Challenge," an event that raised $115 ...

turning her tragedy into advocacy. Mandi Bailey leads the Veterans ALS Action Committee. She's striving to get veterans with ALS involved in research. That data will help us learn more about the ...

“It is about raising funds to advance the mission of the ALS Network, which has three components: Care services, research into prevention, strategies, treatments and cures, as well as advocacy f ...

"We are urgently focused on advancing the three pillars of our mission: local care, global research, and nationwide advocacy," said Sheri Strahl, MPH, MBA, president and CEO of the ALS Network.

The event aims to support those living with ALS and to fund research, advocacy, and care services. ALS, often referred to as Lou Gehrig’s disease, is a progressive neurodegenerative condition ...