News

Columnist Joe MacDonald, who has essential tremors, shares with his sons the feeling of having a sometimes visible disorder.
Alhemo’s expanded approval drew on explorer8, a Phase 3 study that enrolled about 150 hemophilia A or B patients, who didn't ...
The Rare Rewritten campaign hopes to change a misconception about women with X-linked disorders, columnist G Shellye Horowitz ...
Columnist Jennifer Lynne shares what it's like to be a woman living with hemophilia — things she wishes doctors would know about the disorder.
Columnist Allyx Formalejo says that due to ADHD, her tendency to be hyperfocused and need to "help" is really a need for ...
With the launch of a U.S. trial, a treatment using the B-cell medicine BE-101 has been given to a hemophilia B patient for ...
Columnist Joe MacDonald says his son Caeleb learned from living with hemophilia how important it is to always have a plan B.
Learning to adapt to constant numbness and tingling in her hands has given columnist Cazandra Campos-MacDonald new insight into her sons.
Columnist G Shellye Horowitz shares the many miracles she's experienced in her life despite living with the bleeding disorder ...
CHMP has advised that Alhemo be approved for people with severe hemophilia A and moderate or severe hemophilia B without ...
Columnist Alliah Czarielle's husband may live with chronic illnesses, but she still has high standards in their relationship.